GIST Cancer UK News


Please see the latest news, research and findings below...

Bennet’s Story

I am 75 years old and was diagnosed with a Gastrointestinal Stromal Tumour (GIST) May / June 2021. My tumour is 21cm long by 21cms wide. I started experiencing problems at the end of March 2021 and  was having bowel issues and not going to the toilet. My wife phoned the GP which led to […]

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The 20for20 Challenge is back!

The 20for20 Challenge is back! We have again joined forces with 19 other less well known cancer charities to create an exciting 20-day challenge to raise funds to make up the shortfall in our income due to the pandemic. Funds that are vital to enable us to continue with our work. This year’s 20for20 Challenge […]

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Jayne’s Story

I was diagnosed in 2016 with diabetes and high blood pressure so decided to lose weight and eat healthy. By the beginning of 2020 I had lost almost 6 stone and my diabetes was in remission and my blood pressure normal. In March 2020 at the beginning of the COVID lockdown I started using a […]

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Jo’s Story (2)

I am a 51 year old mother to our 10 year old son and currently working as a self employed commercial photographer and artist. I live in Nottingham. In the past I gained a post graduate diploma in psychotherapy with Birmingham University. I also worked for NHS Direct for 5 years as a Health Information […]

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We are looking for new Trustees – could it be you?

Hello everyone, As you are hopefully aware, GIST Cancer UK is managed by a Trustee board who are all volunteers. Most of our team are either GIST patients, carers or family friends. Sheena Kynoch has been our Charity Secretary from the start in 2009! We have regretfully accepted that Sheena wishes to retire and are […]

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GIST Cancer UK’s Awareness Appeal…

As many of you will be aware, 13th July is “GIST Awareness Day” in the International Calendar. This is a day to raise awareness that rare GIST Cancer exists and that our patients need support and research for improved treatments and a ultimately a cure. GIST patient advocacy groups all over the world use this day to […]

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13th July is GIST Cancer Awareness Day!

As you may be aware, GIST Cancer UK is the only charity in the UK concentrating specifically on GIST Cancer.  We have launched our “GIST CANCER AWARENESS DAY APPEAL” because we need your help to make up the shortfall in our income due to the Covid 19 pandemic. The vast majority of our funding comes […]

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Calling All Paediatric & SDH deficient GIST Patients…

Invitation for Paediatric and SDH deficient GIST patients… As you may remember, in September 2018, GIST Cancer UK and our specialist PAWS-GIST clinic team at Addenbrookes hospital in Cambridge, joined forces with Liferaft Group of America and world specialists as founding members of the International Paediatric and SDH deficient GIST consortium. It is GIST Awareness […]

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