GIST Cancer UK works with the National Cancer Registration and Analysis Service (NCRAS).
NCRAS is currently part of Public Health England and is moving to NHS Digital in October 2021.
NCRAS uses data provided by patients with cancer and collected by the NHS in England as part of their care and support. NCRAS uses this data to detect changes in the health of the population and to help the NHS and researchers improve the diagnosis and treatment of cancer.
NCRAS registers tumours, including gastrointestinal stromal tumours (GISTs).
It uses the International Classification of Diseases for Oncology (ICD-O) system, which is specified by the World Health Organization (WHO).
Since 2016, NCRAS has been collecting and recording molecular diagnostic tests on tumours. This includes mutational status information for GIST cancer patients.