With the help of Steelwork Santa’s Chief Elf, Candy Cane, multi-award winning photographer, Adele Morris has managed to pull Santa away from his busy North Pole workshop for a very special visit to Porthcawl in South Wales… Although uncertainties surrounding Covid-19 are still prevalent this festive season, Santa and his spectacular Family Claus have made […]

Massive congratulations to Francesca Wilkinson who has, quite literally, gone “ABOVE & BEYOND”  to raise funds for GIST Cancer UK! “Hello, I’m Francesca Wilkinson and I am fundraising for,  GIST Cancer UK.  I did a 15,000ft skydive on the 3rd of November 2021 and it was honestly one of the best experiences of my life! […]

One donation, twice the impact! Your money could be doubled if you donate to GIST Cancer UK in the BIG GIVE CHRISTMAS CHALLENGE! We’re very excited to have been selected to participate in the Big Give Christmas Challenge 2021, the UK’s largest matched funding campaign and would like to thank The Reed Foundation for being […]

It has been a busy month for some of our intrepid supporters. There have been marathon’s and walks across the nation and also in mainland Europe… Thank you to everyone who has participated and flown the flag for GIST Cancer UK and thank you to everyone who has donated and supported our athletes, some of whom […]

We held our second “Virtual” GCUK Patient & Carer meeting in on 14th October 2021 and were joined by seventy-five patients and carers to see and hear presentations from our specialist friends: • Dr Carys Morgn & Dr Ramesh Bulusu who gave a fantastic presentation on the use of “Radiotherapy in GIST Cancer”. • GIST […]

PAWS-GIST Clinic -October 2021 Well, it has been a momentous week for the PAWS-GIST Clinic.. On Thursday 30th September and Friday 1st October, we hosted the first clinic since November 2019 after which everything shut down when the pandemic struck… A lot has changed in that time; – The hotel that we have used since […]

We are very disappointed to report that the NICE single technology appraisal of avapritinib (Ayvakit) for the treatment of unresectable or metastatic PDGFRA D842V-mutant GIST has been terminated. PDGFRA D842V-mutant GIST is an ultra-rare form of GIST affecting 5-10 newly diagnosed GIST cancer patients each year in the UK. After a significant amount of work […]

Lee Brown was first diagnosed with GIST cancer 6 years ago. Lee and his family and friends have been amazing in putting on a variety of fun challenges and events designed to raise awareness of GIST Cancer and raise funds for GIST Cancer UK. Determined to beat his target of £20,000, Lee has joined his […]

It’s not long now until our next “Virtual Patient/Carer Meeting” via Zoom on the afternoon of Thursday, 14th October 2021. If you would like to join us please click on this link to register for your place and you will be sent the joining instructions. We have two of the UK’s leading GIST Specialists, a […]

GIST Cancer UK is delighted to be supporting and contributing to the NHS “Help us to Help you” campaign. Please take a look at the NHS campaign video which includes GIST patient Sarah along with Stephen Fry and Dr Hilary Jones… During the COVID-19 pandemic we have all been isolating. Isolation has prevented many from […]