Thank you for your help Steelworks Santa and the family Claus!

With the help of Steelwork Santa’s Chief Elf, Candy Cane, multi-award winning photographer, Adele Morris has managed to pull Santa away from his busy North Pole workshop for a very special visit to Porthcawl in South Wales… Although uncertainties surrounding Covid-19 are still prevalent this festive season, Santa and his spectacular Family Claus have made […]

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Jumping for GIST Cancer UK!

Massive congratulations to Francesca Wilkinson who has, quite literally, gone “ABOVE & BEYOND”  to raise funds for GIST Cancer UK! “Hello, I’m Francesca Wilkinson and I am fundraising for,  GIST Cancer UK.  I did a 15,000ft skydive on the 3rd of November 2021 and it was honestly one of the best experiences of my life! […]

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The Big Give Christmas Challenge 2021

One donation, twice the impact! Your money could be doubled if you donate to GIST Cancer UK in the BIG GIVE CHRISTMAS CHALLENGE! We’re very excited to have been selected to participate in the Big Give Christmas Challenge 2021, the UK’s largest matched funding campaign and would like to thank The Reed Foundation for being […]

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PAWS-GIST Clinics re-open!

PAWS-GIST Clinic -October 2021 Well, it has been a momentous week for the PAWS-GIST Clinic.. On Thursday 30th September and Friday 1st October, we hosted the first clinic since November 2019 after which everything shut down when the pandemic struck… A lot has changed in that time; – The hotel that we have used since […]

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NICE – Single Technology Appraisal (STA) – Avapritinib for treating unresectable or metastatic gastrointestinal stromal tumours – Terminated…

We are very disappointed to report that the NICE single technology appraisal of avapritinib (Ayvakit) for the treatment of unresectable or metastatic PDGFRA D842V-mutant GIST has been terminated. PDGFRA D842V-mutant GIST is an ultra-rare form of GIST affecting 5-10 newly diagnosed GIST cancer patients each year in the UK. After a significant amount of work […]

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