Today our Vice Chair Jayne Bressington participated in the first of a series of RareCan discussions. In this video Jayne and Debbie Binner, Non-executive director of RareCan, discuss their personal experiences of PAWS-GIST and Ewing’s Sarcoma with Professor Andy Hall a Founder and Director of RareCan. Please watch & share this video By joining RareCan, […]

  What happens during the BIG GIVE Christmas Challenge? Donations made via GIST Cancer UK’s project page: between 12 noon on December 1st and 8th will be matched. This means that your donation will be doubled and have twice the impact! All you need to do is:  At 12 noon on 1st December make your donation […]

Dear friends of GIST Cancer UK We have some very sad news to report. Our dear friend and colleague David Falconer has sadly passed away, having succumbed to Lung Cancer. David spent many years in the pharmaceutical industry, primarily in Oncology. He was specifically involved with sunitinib which is used as a treatment for GIST […]

We are very excited to have been selected to participate in the “Big Give Christmas Challenge 2020”, which is the UK’s largest matched funding campaign. Thank you “The Hospital Saturday Fund” for being our champion! Our fundraising project Supporting GIST Cancer patients through the Covid19 pandemic is aiming  to make up the shortfall in our […]

NICE is reviewing a procedure called ‘Endoscopic full thickness removal of gastrointestinal stromal stomach tumours’ They are looking to understand how well this procedure works and if it is safe enough to be used more widely in the NHS in the future. If you have had a GIST removed using this technique please can you […]

One of the things patients and their carers tell us they most value about our Patient Meetings is having the opportunity to share experiences with other patients. So when we had to cancel some of this years Patient Meetings due to the pandemic we decided to produce some videos featuring “patients talking about their personal […]

We have joined forces with 19 other less common cancer charities to create a unique & exciting 20-day challenge called the 20for20 Challenge to raise funds to make up the shortfall in our income due to the pandemic. Funds that are vital to enable us to continue with our work. The Covid-19 pandemic has led […]

We are delighted to hear that our friends at the Scottish Sarcoma Network (SSN) have been shortlisted for the BMJ 2020, “Cancer Care Team of the Year award” for their “National Sarcoma MDT improvement project”. This project which was initiated by Dr Ioanna Nixon and co-led by Dr Mark McCleery and Lindsay Campbell on behalf […]

In 2017 GIST Cancer UK approved a research grant application for pathologist Dr Newton Wong to undertake next generation sequencing  (NGS) of wild-type GIST’s to identify therapeutic targets. Earlier this month (July 2020) – Dr Wong’s research paper “Next generation sequencing demonstrates the rarity of short kinase variants specific to quadruple wild type gastrointestinal stromal […]

GIST Cancer UK is excited to announce that we have appointed three new trustees. The charity is made up of a board of volunteer trustees, many of whom are GIST patients or carers. The New trustees, Tony Manuel, Jane Means and Terry Riley bring a range of crucial skills and experience to help the charity […]