GIST Cancer UK works with the National Cancer Registration and Analysis Service (NCRAS). NCRAS is currently part of Public Health England and is moving to NHS Digital in October 2021. NCRAS uses data provided by patients with cancer and collected by the NHS in England  as part of their care and support. NCRAS uses this […]

Dinnington Town FC in Sheffield have a new over 45s football team for next season. We are very proud that the “Dinnington GIST Cancer UK” team will be sporting our logo on their new strip, to raise awareness of GIST Cancer. Wishing the team a brilliant season! Thank you from all and GIST Cancer UK”

Hello everyone, As you are hopefully aware, GIST Cancer UK is managed by a Trustee board who are all volunteers. Most of our team are either GIST patients, carers or family friends. Sheena Kynoch has been our Charity Secretary from the start in 2009! We have regretfully accepted that Sheena wishes to retire and are […]

As many of you will be aware, 13th July is “GIST Awareness Day” in the International Calendar. This is a day to raise awareness that rare GIST Cancer exists and that our patients need support and research for improved treatments and a ultimately a cure. GIST patient advocacy groups all over the world use this day to […]

As you may be aware, GIST Cancer UK is the only charity in the UK concentrating specifically on GIST Cancer.  We have launched our “GIST CANCER AWARENESS DAY APPEAL” because we need your help to make up the shortfall in our income due to the Covid 19 pandemic. The vast majority of our funding comes […]

Invitation for Paediatric and SDH deficient GIST patients… As you may remember, in September 2018, GIST Cancer UK and our specialist PAWS-GIST clinic team at Addenbrookes hospital in Cambridge, joined forces with Liferaft Group of America and world specialists as founding members of the International Paediatric and SDH deficient GIST consortium. It is GIST Awareness […]

Dave William’s wrote to us further to running a half marathon in is home town of Poole to raise awareness of GIST Cancer and funds for GIST Cancer UK, to support his best friend Stuart and others who are diagnosed with GIST cancer. Dave’s story about what motivated him to help, makes touching and inspiring […]

As the COVID restrictions begin to lift and life starts to get back to some semblance of normality our fundraisers and supporters have been busy raising vital funds for GIST Cancer and PAWS-GIST. Our thanks goes to Gayle Scott and the rest of the Miles for Moray team for the tremendous effort they put into […]

We held our very first “Virtual” patient & Carer meeting in April and one hundred people joined us to see and hear presentations from our specialist friends: Dr Ioanna Nixon and Professor Robin Jones who presented how they have been Addressing the special needs of GIST cancer patients during the pandemic and lockdown. PAWS-GIST patient Vicky Rockingham MBE and […]

GIST Cancer UK exists to support patients and stimulate research to improve treatments and find a cure. Science is advancing at pace but there are still so many unanswered questions. Genomics has the potential to help us find the answers. We have been invited to host a stand at the Genomics Partnership Wales Genomics Showcase […]