Private Online Patient & Carer Forum
Exchange news and views with other members on our Forum.
Our Online Forum
The online forum provides a virtual space to speak to other GIST patients. Access is restricted to those who have registered with GCUK so you won't be inundated with unsolicited emails that are not GIST-related. You can Register here.
There's no limit to the questions asked (as long as its broadly GIST-related) but typically people ask about specialist and non-specialist centres, treatments, handling the side-effects of drugs, health and travel insurance amongst many other things. You'll be able to tap into the perspectives of a broad community of experienced GISTers. You don't have to ask questions - you can just 'lurk'.
The Forum is moderated
"Please be respectful of others and abide by our social media policy."
GCUK Code of Practice for online activity
Users must:
- Treat others and their experiences with respect.
- Avoid personal attacks on health care professionals and others involved in the care and support of GIST patients.
- Respect confidentiality and not share the views or experiences of others beyond the forums unless approved by that person.
Users should:
- Be supportive of those with a GIST and those providing care, treatment and support for those undergoing treatment sharing their own experiences when appropriate
- Share blog posts, articles and other content which might be of interest to the community.
- Ensure that messages are as short and succinct as possible.
- Avoid using capital letters except where required.
- Indicate their home location and if they are willing to be contacted.
Users must not:
- Create or transmit material that might be defamatory.
- Discriminate on the basis of race, age, sex, religious or political belief, national origin, disability, sexual orientation or any other characteristic protected by UK law.
- Post articles that have copyright protection. (Post the URL, i.e. website address, instead).
- Post messages, images or links to material or content that is inappropriate for other users.
- Use platforms provided by GCUK for advertising purposes.
- Use platforms provided by GCUK for illegal or criminal activities.
- Send offensive or harassing material to others.
- Broadcast views on social, political, religious or other non-GIST related matters.
- Post, upload, forward or link spam, junk email, chain emails and messages.
- Send or post messages or material that could damage GCUK’s image or reputation.
GCUK will:
- Ensure that all users are aware of expected practice.
- Monitor activity and take appropriate action where necessary.