Patient stories

Hear from Patients who have shared their GIST journey with us...

Share your experience

Everyone's experience is different...

This page is currently being redeveloped with some old, new and refreshed stories from GIST patients. Everyone's experience is different and you should be able to find those relevant to you and your situation once we have completed updating.

If you have an experience you would be happy to share then contact patientstories@gistcancer.org.uk

Patient stories...

David's Story »

David’s story, like so many other shows a lot of misdiagnosis, IBS, Appendicitis & Gastritis...  | Read more »

Tammy's Story »

Tammy’s GIST story features bowel removal, LARS, ileostomy, stoma, GIST Metastasis and Regorafenib...  | Read more »

Eileen's Story »

Eileen's story has stomach pain, night sweats, and keyhole surgery  | Read more »

Garry's Story »

Garry has battled with 4 different types of cancer in his lifetime including GIST in his bowel and then in his hip...  | Read more »

Vicky's Story »

Living with Wild-Type GIST Cancer...  | Read more »

Michael's Story »

Written by his wife Jane...  | Read more »