A research team at the University of Cambridge is to lead a groundbreaking study exploring genomics, in gastrointestinal stromal tumours (GISTs), with the aim of unlocking new treatment options for these sarcoma patients. Co-funders Sarcoma UK and GIST Cancer UK will jointly commit £140,000 to the project, marking the first research collaboration between the two […]

Sending love and best wishes for peace, health and happiness in the coming year x    

As you may or may not be aware, Virgin Money Giving (VMG) has decided to close down on 30th November, further to their sponsorship of the London Marathon coming to an end. If you have been making donations to GIST Cancer UK or our PAWS-GIST fund using VMG, the site can be used up until […]

With the help of Steelwork Santa’s Chief Elf, Candy Cane, multi-award winning photographer, Adele Morris has managed to pull Santa away from his busy North Pole workshop for a very special visit to Porthcawl in South Wales… Although uncertainties surrounding Covid-19 are still prevalent this festive season, Santa and his spectacular Family Claus have made […]

Massive congratulations to Francesca Wilkinson who has, quite literally, gone “ABOVE & BEYOND”  to raise funds for GIST Cancer UK! “Hello, I’m Francesca Wilkinson and I am fundraising for,  GIST Cancer UK.  I did a 15,000ft skydive on the 3rd of November 2021 and it was honestly one of the best experiences of my life! […]

One donation, twice the impact! Your money could be doubled if you donate to GIST Cancer UK in the BIG GIVE CHRISTMAS CHALLENGE! We’re very excited to have been selected to participate in the Big Give Christmas Challenge 2021, the UK’s largest matched funding campaign and would like to thank The Reed Foundation for being […]

It has been a busy month for some of our intrepid supporters. There have been marathon’s and walks across the nation and also in mainland Europe… Thank you to everyone who has participated and flown the flag for GIST Cancer UK and thank you to everyone who has donated and supported our athletes, some of whom […]

We held our second “Virtual” GCUK Patient & Carer meeting in on 14th October 2021 and were joined by seventy-five patients and carers to see and hear presentations from our specialist friends: • Dr Carys Morgn & Dr Ramesh Bulusu who gave a fantastic presentation on the use of “Radiotherapy in GIST Cancer”. • GIST […]

PAWS-GIST Clinic -October 2021 Well, it has been a momentous week for the PAWS-GIST Clinic.. On Thursday 30th September and Friday 1st October, we hosted the first clinic since November 2019 after which everything shut down when the pandemic struck… A lot has changed in that time; – The hotel that we have used since […]

We are very disappointed to report that the NICE single technology appraisal of avapritinib (Ayvakit) for the treatment of unresectable or metastatic PDGFRA D842V-mutant GIST has been terminated. PDGFRA D842V-mutant GIST is an ultra-rare form of GIST affecting 5-10 newly diagnosed GIST cancer patients each year in the UK. After a significant amount of work […]