This week Blueprint Pharmaceuticals announced the results of their Voyager trial which compared AYVAKIT™ (avapritinib) with Regorafenib. The trial did not meet the main aim (or endpoint). As a result they are proposing: To continue promoting avapritinib in the United States for the treatment of adults with unresectable or metastatic PDGFRA exon 18 mutated GIST, including […]

On Sunday 26 April the London Marathon was cancelled due to the coronavirus outbreak and it is likely that many other events that would normally involve our fantastic #GISTCANCERUK & #PAWSGIST supporters will also not go ahead this year. So, we are hoping that you can have some fun while in lock down and raise vital […]

We are very pleased to announce that NICE has approved the Bayer drug Larotrectinib (Vitrakvi) for use via the Cancer drug fund (CDF) in England for adults and children who have failed other treatment options and whose tumours test positively for the rare NTRK fusion (Neurotrophic Tyrosine Receptor Kinase fusion). Described as an histology agnostic […]

The government is advising that people with cancer should be particularly stringent in following social distancing measures. Some people with cancer are more at risk of becoming seriously ill if they contract the COVID-19 infection. We have very little information currently, and consequently you should rigorously follow the social distancing advice. If you live with […]

Funds raised by GIST Cancer UK / PAWS-GIST Supporters help us to stimulate and fund research projects aimed at improving treatments for GIST patients. The poster below was recently presented at the National Cancer Research Institutes conference. It highlights PAWS-GIST research that has been funded by GCUK’s PAWS-GIST research fund. None of this would be […]

We are doing our best to improve the data that is held by Public Health England and the NHS so that there is a better understanding about GIST and sarcoma. Our friends at Sarcoma UK have just launched a survey covering all sarcomas and GIST, with the aim of gathering new and updated data on […]

Join our FREE ENTRY LUCKY DRAW / Photo competition and help us to spread the word(s)…  GIST Cancer UK! As many of you will know GIST Support UK (GSUK) is in the process of changing names to GIST Cancer UK (GCUK) so that everyone can understand that GIST is cancer.   Continuing the soft launch of our name […]

November continued to be a very exciting month for our PAWS-GIST alliance. From the NCRI awards ceremony in Glasgow we travelled south to Cambridge. Here we met with representatives from Groundwork UK and Tesco who presented us with a cheque for £10,000 which has been awarded to PAWS-GIST as a result of the “Tesco Centenary Grant Award”. This fantastic […]

We are really excited to announce that our PAWS GIST (Paediatric Adolescent Wild-type & Syndromic GIST) alliance has been awarded the National Cancer Research Institute‘s “Collaboration award”. This award recognises our unique European multidisciplinary team of patients, doctors, specialists and researchers who are collaborating to improve treatments and working to find a cure for PAWS-GIST cancer. The nominations were reviewed […]

The ESMO  2019 conference (European Society of Medical Oncology) was held in Barcelona this weekend. Our Vice chair Jayne Bressington was there for four days of learning, attending seminars, meeting with Rare Cancers Europe, networking and searching for news and updates relevant to GIST patients. There are a range of things that she will be following up over […]