PAWS-GIST Clinic -October 2021 Well, it has been a momentous week for the PAWS-GIST Clinic.. On Thursday 30th September and Friday 1st October, we hosted the first clinic since November 2019 after which everything shut down when the pandemic struck… A lot has changed in that time; – The hotel that we have used since […]

We are very disappointed to report that the NICE single technology appraisal of avapritinib (Ayvakit) for the treatment of unresectable or metastatic PDGFRA D842V-mutant GIST has been terminated. PDGFRA D842V-mutant GIST is an ultra-rare form of GIST affecting 5-10 newly diagnosed GIST cancer patients each year in the UK. After a significant amount of work […]

Lee Brown was first diagnosed with GIST cancer 6 years ago. Lee and his family and friends have been amazing in putting on a variety of fun challenges and events designed to raise awareness of GIST Cancer and raise funds for GIST Cancer UK. Determined to beat his target of £20,000, Lee has joined his […]

It’s not long now until our next “Virtual Patient/Carer Meeting” via Zoom on the afternoon of Thursday, 14th October 2021. If you would like to join us please click on this link to register for your place and you will be sent the joining instructions. We have two of the UK’s leading GIST Specialists, a […]

GIST Cancer UK is delighted to be supporting and contributing to the NHS “Help us to Help you” campaign. Please take a look at the NHS campaign video which includes GIST patient Sarah along with Stephen Fry and Dr Hilary Jones… During the COVID-19 pandemic we have all been isolating. Isolation has prevented many from […]

The 20for20 Challenge is back! We have again joined forces with 19 other less well known cancer charities to create an exciting 20-day challenge to raise funds to make up the shortfall in our income due to the pandemic. Funds that are vital to enable us to continue with our work. This year’s 20for20 Challenge […]

GIST Cancer UK works with the National Cancer Registration and Analysis Service (NCRAS). NCRAS is currently part of Public Health England and is moving to NHS Digital in October 2021. NCRAS uses data provided by patients with cancer and collected by the NHS in England  as part of their care and support. NCRAS uses this […]

Dinnington Town FC in Sheffield have a new over 45s football team for next season. We are very proud that the “Dinnington GIST Cancer UK” team will be sporting our logo on their new strip, to raise awareness of GIST Cancer. Wishing the team a brilliant season! Thank you from all and GIST Cancer UK”

Hello everyone, As you are hopefully aware, GIST Cancer UK is managed by a Trustee board who are all volunteers. Most of our team are either GIST patients, carers or family friends. Sheena Kynoch has been our Charity Secretary from the start in 2009! We have regretfully accepted that Sheena wishes to retire and are […]

As many of you will be aware, 13th July is “GIST Awareness Day” in the International Calendar. This is a day to raise awareness that rare GIST Cancer exists and that our patients need support and research for improved treatments and a ultimately a cure. GIST patient advocacy groups all over the world use this day to […]