GIST Cancer UK News


Please see the latest news, research and findings below...

PAWS-GIST Clinics re-open!

PAWS-GIST Clinic -October 2021 Well, it has been a momentous week for the PAWS-GIST Clinic.. On Thursday 30th September and Friday 1st October, we hosted the first clinic since November 2019 after which everything shut down when the pandemic struck… A lot has changed in that time; – The hotel that we have used since […]

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NICE – Single Technology Appraisal (STA) – Avapritinib for treating unresectable or metastatic gastrointestinal stromal tumours – Terminated…

We are very disappointed to report that the NICE single technology appraisal of avapritinib (Ayvakit) for the treatment of unresectable or metastatic PDGFRA D842V-mutant GIST has been terminated. PDGFRA D842V-mutant GIST is an ultra-rare form of GIST affecting 5-10 newly diagnosed GIST cancer patients each year in the UK. After a significant amount of work […]

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The 20for20 Challenge is back!

The 20for20 Challenge is back! We have again joined forces with 19 other less well known cancer charities to create an exciting 20-day challenge to raise funds to make up the shortfall in our income due to the pandemic. Funds that are vital to enable us to continue with our work. This year’s 20for20 Challenge […]

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We are looking for new Trustees – could it be you?

Hello everyone, As you are hopefully aware, GIST Cancer UK is managed by a Trustee board who are all volunteers. Most of our team are either GIST patients, carers or family friends. Sheena Kynoch has been our Charity Secretary from the start in 2009! We have regretfully accepted that Sheena wishes to retire and are […]

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GIST Cancer UK’s Awareness Appeal…

As many of you will be aware, 13th July is “GIST Awareness Day” in the International Calendar. This is a day to raise awareness that rare GIST Cancer exists and that our patients need support and research for improved treatments and a ultimately a cure. GIST patient advocacy groups all over the world use this day to […]

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