News: recent posts
RareCan discuss the barriers to rare cancer research and the potential for doing things differently with PAWS-GIST patient director Jayne Bressington
Today our Vice Chair Jayne Bressington participated in the first of a series of RareCan discussions. In this video Jayne and Debbie Binner, Non-executive director of RareCan, discuss their personal experiences of PAWS-GIST and Ewing’s Sarcoma with Professor Andy Hall a Founder and Director of RareCan. Please watch & share this video By joining RareCan, […]
With just a short time to 1st December, we are excited see how many famous faces are involved in this year’s BIG GIVE video…
What happens during the BIG GIVE Christmas Challenge? Donations made via GIST Cancer UK’s project page: between 12 noon on December 1st and 8th will be matched. This means that your donation will be doubled and have twice the impact! All you need to do is: At 12 noon on 1st December make your donation […]
Tribute to David Falconer – GIST Cancer UK Trustee Board Member
Dear friends of GIST Cancer UK We have some very sad news to report. Our dear friend and colleague David Falconer has sadly passed away, having succumbed to Lung Cancer. David spent many years in the pharmaceutical industry, primarily in Oncology. He was specifically involved with sunitinib which is used as a treatment for GIST […]
One donation, twice the impact! Your donation to GIST Cancer UK will be doubled in the BIG GIVE CHRISTMAS CHALLENGE!
We are very excited to have been selected to participate in the “Big Give Christmas Challenge 2020”, which is the UK’s largest matched funding campaign. Thank you “The Hospital Saturday Fund” for being our champion! Our fundraising project Supporting GIST Cancer patients through the Covid19 pandemic is aiming to make up the shortfall in our […]
Can you help with NICE review of “Endoscopic full thickness removal of GISTs?”
NICE is reviewing a procedure called ‘Endoscopic full thickness removal of gastrointestinal stromal stomach tumours’ They are looking to understand how well this procedure works and if it is safe enough to be used more widely in the NHS in the future. If you have had a GIST removed using this technique please can you […]
Supporting GIST Cancer patients throughout the Covid19 pandemic
One of the things patients and their carers tell us they most value about our Patient Meetings is having the opportunity to share experiences with other patients. So when we had to cancel some of this years Patient Meetings due to the pandemic we decided to produce some videos featuring "patients talking about their personal […]
Join the 20:20 Challenge for GIST Cancer UK!
We have joined forces with 19 other less common cancer charities to create a unique & exciting 20-day challenge called the 20for20 Challenge to raise funds to make up the shortfall in our income due to the pandemic. Funds that are vital to enable us to continue with our work. The Covid-19 pandemic has led […]
Scottish Sarcoma Network Shortlisted for BMJ “Cancer Care Team of the Year award”
We are delighted to hear that our friends at the Scottish Sarcoma Network (SSN) have been shortlisted for the BMJ 2020, “Cancer Care Team of the Year award” for their “National Sarcoma MDT improvement project”. This project which was initiated by Dr Ioanna Nixon and co-led by Dr Mark McCleery and Lindsay Campbell on behalf […]
GCUK PAWS-GIST funded research published in The Journal of Clinical Pathology
In 2017 GIST Cancer UK approved a research grant application for pathologist Dr Newton Wong to undertake next generation sequencing (NGS) of wild-type GIST’s to identify therapeutic targets. Earlier this month (July 2020) – Dr Wong’s research paper “Next generation sequencing demonstrates the rarity of short kinase variants specific to quadruple wild type gastrointestinal stromal […]
GIST Cancer UK appoints 3 new trustees to the board
GIST Cancer UK is excited to announce that we have appointed three new trustees. The charity is made up of a board of volunteer trustees, many of whom are GIST patients or carers. The New trustees, Tony Manuel, Jane Means and Terry Riley bring a range of crucial skills and experience to help the charity […]
Next Patient Meetings
Where: Bath 
When: Date to be confirmed
Where: TBC
When: TBC
If you would like to come, email: meeting@gistcancer.org.uk
We look forward to seeing you!
Meeting Programme
Next PAWS-GIST Clinic
Where: Cambridge
When: Clinic postponed
We are sorry that our 2020 clinics have been cancelled due to the UK Corona Virus outbreak. We are working to organise as soon as it is safe. Date to be confirmed.
Please register to attend via: www.pawsgistclinic.org.uk
We look forward to seeing you!