Welcome to GIST Cancer UK
Who We Are
♦ A network of GIST patients & carers♦ We work with top GIST specialists & National/International groups, to promote best practice♦ We are here to be with you & help you as you come to terms with living with GIST
Read moreWhat We Do
♦ Support Patients living with GIST cancer♦ Provide Information for GIST patients♦ Fund & Stimulate Research♦ Raise awareness of GIST cancer
Read moreSupport Us
♦ Raise funds for Research & Patient Support♦ Raise awareness of GIST♦ "Like" us on Facebook / "Follow" us on Twitter
Read moreNews: recent posts
Phase 2 Trial
Combination treatment with avelumab and regorafenib has shown activity in patients with relapsed/refractory gastrointestinal stromal tumors (GIST), according to research presented at the ESMO Congress 2023.
Autumn Newsletter
The Autumn Newsletter has arrived with updates on a range of GIST-related matters. GIST Cancer UK October Newsletter
Leeds Sessions
Videos of the sessions at the October 2023 Patient Carer meeting held in Leeds are now available on the Patient Meetings 2023 section of this site.
Ripretinib vs Sunitinib
The outcome of the recent Intrigue study which compared the effectiveness and side effects associated with these drugs can be found here
Managing side effects
The Life Raft. Group (the US equivalent of GIST Cancer UK) hold a series of online events that may be of interest to patients and carers in the UK. The next one is on September 18th and is entitled: Managing the side-effects of GIST therapies.
Donations
The Board of Trustees continue to look at how the charity operates in order to keep costs low and bureaucracy to a minimum. Following a review of our financial structure, we are reducing the number of bank accounts we have and instead starting to utilise facilities that attract bank interest. To facilitate this, we ask […]
Scottish Patient/Carer Meeting
The annual Scottish patient meeting will take place on Friday, 1st December 2023 at the Cosla Conference Centre, Verity House, 19 Haymarket Yards, Edinburgh EJ12 5BH. To book a place please email meetings@gistcancer.org.uk
May 2023 Newsletter
The May edition of our new newsletter is now available and can be downloaded here. GIST Cancer UK May Newsletter
Presentations from the London meeting
Video recordings from the recent London Patient/Carer event are now available under the ‘Patient Meetings‘ section of this site.
Generic Imatinib poster
At the recent BSG Conference, Drs Bulusu and Jennifer Harrington presented findings from an initial exploration of the effectiveness of different generic versions of imatinib,
Next Patient Meetings
Friday, 1st December 2023- The Cosla Conference Centre, Verity House, 19 Haymarket Yards, Edinburgh EJ12 5BH
Friday, 12th April 2024 - Mariott Hotel, Mill Lane, Cardiff
Friday, 4th October 2024 - Millennium Gloucester Hotel, Kensington, London
For further information contact: meetings@gistcancer.org.uk
Next PAWS-GIST Clinic
Where: Cambridge
When: 12th April 2024
If you would like to attend a future PAWS-GIST clinic please register via: pawsgistclinic.org.uk
We look forward to seeing you!
9th August 2024
6th December 2024
Clinical Trials News
We are extremely fortunate to have GIST specialists and researchers in the UK who dedicate their lives to improving treatments and finding a cure for GIST. The link below will take you to the trials that we are currently aware of..
National GIST Tissue Bank
Find out more about this important work and how you can assist research into GIST cancer by donating a tissue sample to the National GIST Tissue bank. | Read more.