Welcome to GIST Cancer UK
Who We Are
♦ A network of GIST patients & carers♦ We work with top GIST specialists & National/International groups, to promote best practice♦ We are here to be with you & help you as you come to terms with living with GIST
Read moreWhat We Do
♦ Support Patients living with GIST cancer♦ Provide Information for GIST patients♦ Fund & Stimulate Research♦ Raise awareness of GIST cancer
Read moreSupport Us
♦ Raise funds for Research & Patient Support♦ Raise awareness of GIST♦ "Like" us on Facebook / "Follow" us on Twitter
Read moreNews: recent posts

Online GIST Patient/Carer Meeting – Thursday, 15th April 2021 – via Zoom
It’s not long now until our very first “Virtual Patient/Carer Meeting” via Zoom on the afternoon of Thursday, 15th April 2021. If you would like to join us please click on this link to register for your place and you will be sent the joining instructions. We have two of the UK’s leading GIST Specialists, […]
Take part in the 2021 Kiltwalk and The Hunter Foundation will top up everything you raise for GCUK by 50%!
A virtual Kiltwalk is any challenge taken on at home or within your local area on the weekend of 23rd – 25th April 2021. You can walk, run, cycle, skip or even boogie! Simply sign up here and download a Challenge Pack, activate a Just Giving fundraising page and complete the challenge. You will receive […]
entrectinib (Rozlytrek) accepted by the Scottish Medicines Consortium for use by NHSScotland
We are delighted to report that after months of assessment and review, taking into account the views from a Patient and Clinician Engagement (PACE) meeting, that the Roche drug entrectinib (Rozlytrek) has been accepted by the Scottish Medicines Consortium for use by NHS Scotland as monotherapy for the treatment of adult and paediatric patients 12 […]
Tribute to James Palgrave – GIST Cancer UK Trustee Board Member
Dear friends of GIST Cancer UK We are very sad to report that our lovely colleague and friend James Palgrave has passed away. James was diagnosed with GIST in June 2016 and joined GCUK as a trustee offering to help the charity with our IT needs when our previous IT specialist retired. After successful surgery […]
We have x10 places in the 2021 London Marathon – Apply now for a place!
We are really excited to announce that GIST Cancer UK has 10 charity places in the 2021 VIRTUAL Virgin Money London Marathon! If you or your family and friends would like to raise funds for GIST Cancer UK & PAWS-GIST as a runner on Sunday 3rd October 2021 please email fundraising@gistcancer.org.uk to apply for a […]
London Marathon – Do you or someone you know have a ballot place?
The results from the London Marathon official public ballot will be announced this Monday 8th February 2021. If you or anyone in your family / network of friends are successful in gaining a ballot place and would like to raise money for GIST Cancer UK & PAWS-GIST, please contact the Fundraising team on fundraising@gistcancer.org.uk We […]
Making GIST Cancer patients more visible to Researchers…
The 4th of February was World Cancer Day and as we progress through the year there will be a series of other cancer awareness days, covering each type and also those classified as rare. GIST cancer awareness day is in July which is Sarcoma awareness month. We are all very aware of rare GIST Cancer […]
Join our new partnership with RareCan to help GIST Cancer Research…
Happy New Year! We have established a new partnership with RareCan which has been founded by our good friend Professor Andy Hall who was instrumental in helping us to establish the National GIST Tissue Bank for GIST research. You will be aware that GCUK are relentless in our focus to improve treatments and outcomes for […]
A huge thank you to everyone who supported GIST Cancer UK during this year’s Big Give #ChristmasChallenge!
A huge thank you to everyone who supported GIST Cancer UK during this year’s Big Give #ChristmasChallenge including our pledgers and champions The Hospital Saturday Fund. Thanks to your generosity we have raised an amazing £6,780.00. Everything you have donated will be used to improve GIST patients’ quality of life and invested in research to […]
The Big Give Christmas Challenge is now live! Donate to GIST Cancer UK via our project page
The Big Give Christmas Challenge is now live! Donate to GIST Cancer UK via our project page https://donate.thebiggive.org.uk/campaign/a051r00001emyYyAAI between 12 noon today (December 1st) and 8th December and your donation will be matched, allowing you to make an even greater impact. One donation, twice the impact! The matched funding is available on a ‘first come, […]
Next Patient Meetings
Where: Online
When: 15th April 2021
This is our first ever virtual patient meeting.
Registration is now open:
Click here to receive the joining instructions.
We look forward to seeing you!
Next PAWS-GIST Clinic
Where: Cambridge
When: Clinic postponed
We are sorry that our 2020 clinics have been cancelled due to the UK Corona Virus outbreak. We are working to organise as soon as it is safe. Date to be confirmed.
Please register to attend via: www.pawsgistclinic.org.uk
We look forward to seeing you!
Clinical Trials News
We are extremely fortunate to have GIST specialists and researchers in the UK who dedicate their lives to improving treatments and finding a cure for GIST. The link below will take you to the trials that we are currently aware of..