News: recent posts
Thank you for your help Steelworks Santa and the family Claus!
With the help of Steelwork Santa’s Chief Elf, Candy Cane, multi-award winning photographer, Adele Morris has managed to pull Santa away from his busy North Pole workshop for a very special visit to Porthcawl in South Wales… Although uncertainties surrounding Covid-19 are still prevalent this festive season, Santa and his spectacular Family Claus have made […]
Jumping for GIST Cancer UK!
Massive congratulations to Francesca Wilkinson who has, quite literally, gone “ABOVE & BEYOND” to raise funds for GIST Cancer UK! “Hello, I’m Francesca Wilkinson and I am fundraising for, GIST Cancer UK. I did a 15,000ft skydive on the 3rd of November 2021 and it was honestly one of the best experiences of my life! […]
The Big Give Christmas Challenge 2021
One donation, twice the impact! Your money could be doubled if you donate to GIST Cancer UK in the BIG GIVE CHRISTMAS CHALLENGE! We’re very excited to have been selected to participate in the Big Give Christmas Challenge 2021, the UK’s largest matched funding campaign and would like to thank The Reed Foundation for being […]
October 2021 – A really busy and successful month, thanks to our supporters!
It has been a busy month for some of our intrepid supporters. There have been marathon’s and walks across the nation and also in mainland Europe… Thank you to everyone who has participated and flown the flag for GIST Cancer UK and thank you to everyone who has donated and supported our athletes, some of whom […]
GCUK’s second “Virtual” patient and carer meeting
We held our second “Virtual” GCUK Patient & Carer meeting in on 14th October 2021 and were joined by seventy-five patients and carers to see and hear presentations from our specialist friends: • Dr Carys Morgn & Dr Ramesh Bulusu who gave a fantastic presentation on the use of “Radiotherapy in GIST Cancer”. • GIST […]
PAWS-GIST Clinics re-open!
PAWS-GIST Clinic -October 2021 Well, it has been a momentous week for the PAWS-GIST Clinic.. On Thursday 30th September and Friday 1st October, we hosted the first clinic since November 2019 after which everything shut down when the pandemic struck… A lot has changed in that time; – The hotel that we have used since […]
NICE – Single Technology Appraisal (STA) – Avapritinib for treating unresectable or metastatic gastrointestinal stromal tumours – Terminated…
We are very disappointed to report that the NICE single technology appraisal of avapritinib (Ayvakit) for the treatment of unresectable or metastatic PDGFRA D842V-mutant GIST has been terminated. PDGFRA D842V-mutant GIST is an ultra-rare form of GIST affecting 5-10 newly diagnosed GIST cancer patients each year in the UK. After a significant amount of work […]
Dinnington Town F.C. Fundraising for GIST Cancer UK
Lee Brown was first diagnosed with GIST cancer 6 years ago. Lee and his family and friends have been amazing in putting on a variety of fun challenges and events designed to raise awareness of GIST Cancer and raise funds for GIST Cancer UK. Determined to beat his target of £20,000, Lee has joined his […]
Online GIST Patient/Carer Meeting – Thursday, 14th October 2021 – via Zoom
It’s not long now until our next “Virtual Patient/Carer Meeting” via Zoom on the afternoon of Thursday, 14th October 2021. If you would like to join us please click on this link to register for your place and you will be sent the joining instructions. We have two of the UK’s leading GIST Specialists, a […]
GIST Cancer and the NHS “Help us to Help you” campaign
GIST Cancer UK is delighted to be supporting and contributing to the NHS “Help us to Help you” campaign. Please take a look at the NHS campaign video which includes GIST patient Sarah along with Stephen Fry and Dr Hilary Jones… During the COVID-19 pandemic we have all been isolating. Isolation has prevented many from […]
Next Patient Meetings
Where: Bath 
When: Spring 2022
We are looking forward to this being our first in-person meeting in a while...
Next PAWS-GIST Clinic
Where: Cambridge
When: 3rd December 2021
We are delighted to announce the dates of our next PAWS-GIST clinics.
Places at these clinics have been filled by PAWS-GIST patients who have registered over the past year.
If you would like to attend a future PAWS-GIST clinic please register via: pawsgistclinic.org.uk
We look forward to seeing you!
TBC for 2022