News: recent posts
Can you help with NICE review of “Endoscopic full thickness removal of GISTs?”
NICE is reviewing a procedure called ‘Endoscopic full thickness removal of gastrointestinal stromal stomach tumours’ They are looking to understand how well this procedure works and if it is safe enough to be used more widely in the NHS in the future. If you have had a GIST removed using this technique please can you […]
Supporting GIST Cancer patients throughout the Covid19 pandemic
One of the things patients and their carers tell us they most value about our Patient Meetings is having the opportunity to share experiences with other patients. So when we had to cancel some of this years Patient Meetings due to the pandemic we decided to produce some videos featuring "patients talking about their personal […]
Join the 20:20 Challenge for GIST Cancer UK!
We have joined forces with 19 other less common cancer charities to create a unique & exciting 20-day challenge called the 20for20 Challenge to raise funds to make up the shortfall in our income due to the pandemic. Funds that are vital to enable us to continue with our work. The Covid-19 pandemic has led […]
Scottish Sarcoma Network Shortlisted for BMJ “Cancer Care Team of the Year award”
We are delighted to hear that our friends at the Scottish Sarcoma Network (SSN) have been shortlisted for the BMJ 2020, “Cancer Care Team of the Year award” for their “National Sarcoma MDT improvement project”. This project which was initiated by Dr Ioanna Nixon and co-led by Dr Mark McCleery and Lindsay Campbell on behalf […]
GCUK PAWS-GIST funded research published in The Journal of Clinical Pathology
In 2017 GIST Cancer UK approved a research grant application for pathologist Dr Newton Wong to undertake next generation sequencing (NGS) of wild-type GIST’s to identify therapeutic targets. Earlier this month (July 2020) – Dr Wong’s research paper “Next generation sequencing demonstrates the rarity of short kinase variants specific to quadruple wild type gastrointestinal stromal […]
GIST Cancer UK appoints 3 new trustees to the board
GIST Cancer UK is excited to announce that we have appointed three new trustees. The charity is made up of a board of volunteer trustees, many of whom are GIST patients or carers. The New trustees, Tony Manuel, Jane Means and Terry Riley bring a range of crucial skills and experience to help the charity […]
A message from patients and clinicians on International GIST Awareness day!
13th July is GIST Awareness Day! Please help us to reach everyone whose lives are touched by GIST Cancer so they can benefit from the help and support that our GIST Cancer UK community offers. Please click this link Raising awareness and being aware – here are some more inspiring stories: Jo’s Story Pippa’s Story […]
Join LifeRaft Group of America’s “Virtual” LifeFest meeting this weekend!
This weekend the Liferaft group of America are hosting their “LifeFest meeting” as a virtual event for GIST Patients and their families. The programme includes talks from GIST researchers and specialists which you may find interesting. There is also a special session on Monday 13th July for SDH deficient GIST patients where the panel of […]
New cancer drug Entrectinib (Rozlytrek) approved for Cancer Drug Fund in England
We are very pleased to hear that NICE has approved the Roche drug Entrectinib (Rozlytrek), for use via the Cancer drug fund (CDF) in England by adults and children 12 years and older, who have advanced NTRK (Neurotrophic Tyrosine Receptor Kinase) fusion-positive solid tumours and no satisfactory treatment options. Eligible patients will have access to […]
VOYAGER Phase 3 clinical trial results…
This week Blueprint Pharmaceuticals announced the results of their Voyager trial which compared AYVAKIT™ (avapritinib) with Regorafenib. The trial did not meet the main aim (or endpoint). As a result they are proposing: To continue promoting avapritinib in the United States for the treatment of adults with unresectable or metastatic PDGFRA exon 18 mutated GIST, including […]
Next Patient Meetings
Where: Bath 
When: Date to be confirmed
Where: TBC
When: TBC
If you would like to come, email: meeting@gistcancer.org.uk
We look forward to seeing you!
Meeting Programme
Next PAWS-GIST Clinic
Where: Cambridge
When: Clinic postponed
We are sorry that our Spring & Summer clinics were cancelled due to the UK Corona Virus outbreak. We are working to organise a clinic later in 2020. Date to be confirmed.
Please register to attend via: www.pawsgistclinic.org.uk
We look forward to seeing you!