GIST Cancer UK News

Please see the latest news, research and findings below...

GIST Trustees

Introducing GIST Support UK’s Brand new Website!

We are delighted to mark GIST Support UK’s 10th Anniversary in 2019 with the launch of our brand new website! Our work to support patients and stimulate research for improved treatments and a cure for GIST cancer continues and our address remains the same We hope that you like the new design. With very […]

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News from ASCO 2019

Blueprint Medicines announced data from their registration-enabling NAVIGATOR trial of avapritinib in patients with PDGFRA Exon 18 mutant GIST and fourth-line GIST.   These results were presented at the American Society of Clinical Oncology (ASCO) 2019 Annual Meeting and will form the basis for planned worldwide marketing applications for avapritinib. The data demonstrate clinical activity […]

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Rare Cancer Patient SURVEY – October 2018

GIST SUPPORT UK is a member of Cancer52 who are an alliance of nearly 100 rare cancer groups. Cancer52 members have been approached by the research team at the Sir William Dunn School of Pathology, University of Oxford, who are working on a European funded rare cancer initiative that seeks to find and develop innovative solutions to […]

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Founding Members of the International Paediatric and SDH-Deficient GIST Consortium – September 2018

GIST SUPPORT UK UNITES WITH WORLD EXPERTS AS FOUNDING MEMBERS OF THE  “INTERNATIONAL PAEDIATRIC AND SDH-DEFICIENT GIST CONSORTIUM” GIST Support UK and our specialist clinic team PAWS-GIST at the  Addenbrooke’s Cambridge University Hospital NHS Foundation Trust have  joined forces with Liferaft Group of America and world specialists as  founding members of the International Paediatric and […]

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New Horizons GIST Conference Report – September 2018

GIST patient advocates from the global GIST patient community came together, to interact with top GIST experts, to have access to state-of-the- art medical and scientific information and to exchange best practice in patient advocacy among each other. The 2018 conference was balanced symbiosis of medical content, advocacy topics and capacity building sessions. NHGIST_2018_Conference-Report_RL_D (3)

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Scotmid Co-operative Support GIST Support UK – February 2018

A big thank you to Scotmid Co-operative for choosing to support GIST Support UK and the development of our National GIST Tissue bank. Scotmid Co-operative are pleased to support GIST Support UK with a donation designed to help find improved treatment for all forms of this rare cancer. GastroIntestinal Stromal Tumours affects both adults and children with approximately 900 new patients […]

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NICE Approval of Regorafenib for GIST Cancer Patients – October 2017

NEWS RELEASE Cancer Charity GIST Support UK celebrate the NICE Approval of Regorafenib for GIST Cancer Patients Today GIST Support UK, the key charity specifically focused on combating GIST  (gastrointestinal stromal tumour), celebrated the NICE decision to approve regorafenib, a life extending drug, as a third line treatment for GIST cancer patients in England, ensuring […]

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GIST & Imatinib in the Times Newspaper – August 2017

On 19th August the Times published an article on page 19 entitled: This article by science correspondent Oliver Moody reports on the remarkable impact that Imatinib (Glivec) has had on the lives of many GIST patients and features quotes from our Medical Advisory Board Chair Professor Ian Judson and his colleague Professor Winette van der […]

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