GIST patient advocates from the global GIST patient community came together, to interact with top GIST experts, to have access to state-of-the- art medical and scientific information and to exchange best practice in patient advocacy among each other. The 2018 conference was balanced symbiosis of medical content, advocacy topics and capacity building sessions. NHGIST_2018_Conference-Report_RL_D (3)

A big thank you to Scotmid Co-operative for choosing to support GIST Support UK and the development of our National GIST Tissue bank. Scotmid Co-operative are pleased to support GIST Support UK with a donation designed to help find improved treatment for all forms of this rare cancer. GastroIntestinal Stromal Tumours affects both adults and children with approximately 900 new patients […]

NEWS RELEASE Cancer Charity GIST Support UK celebrate the NICE Approval of Regorafenib for GIST Cancer Patients Today GIST Support UK, the key charity specifically focused on combating GIST  (gastrointestinal stromal tumour), celebrated the NICE decision to approve regorafenib, a life extending drug, as a third line treatment for GIST cancer patients in England, ensuring […]

On 19th August the Times published an article on page 19 entitled: This article by science correspondent Oliver Moody reports on the remarkable impact that Imatinib (Glivec) has had on the lives of many GIST patients and features quotes from our Medical Advisory Board Chair Professor Ian Judson and his colleague Professor Winette van der […]

We are delighted to announce that the National GIST guidelines have been updated by the British Sarcoma Group GIST specialists and are now published. A copy of the latest guidelines can be viewed here.

GSUK’s Chair Nic Puntis discusses the BBC’s report on the Cancer Drugs Fund on BBC Wiltshire Radio – listen below…

It is with great sadness that we have to announce the passing of Michael Sayers. Michael fought a brave battle with GIST for over 13 years and during that time was a Trustee of GIST Support UK. We are sure that many GIST patients and carers benefited from Michael’s advice and support through his postings […]

Thank you Strathbogie Junior Agricultural Club! On Wednesday 16th November we were presented with a cheque for £750 raised by the Strathbogie Junior Agricultural Club in Aberdeenshire. Grateful thanks go to Anna Cowie and everyone who has helped to raise this donation. We really appreciate your help and support! Many thanks to everyone who raises […]