Michael Sayers – March 2017
It is with great sadness that we have to announce the passing of Michael Sayers. Michael fought a brave battle with GIST for over 13 years and during that time was a Trustee of GIST Support UK. We are sure that many GIST patients and carers benefited from Michael’s advice and support through his postings […]
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Strathbogie Junior Agricultural Club Support GIST Patients – November 2016
Thank you Strathbogie Junior Agricultural Club! On Wednesday 16th November we were presented with a cheque for £750 raised by the Strathbogie Junior Agricultural Club in Aberdeenshire. Grateful thanks go to Anna Cowie and everyone who has helped to raise this donation. We really appreciate your help and support! Many thanks to everyone who raises […]
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7th SPAEN Annual Conference, September 8-10, 2016 in Warsaw, Poland
Once again, the community of patient advocates for sarcomas, GIST and desmoids came together for the annual Sarcoma PAtients EuroNet Conference. This year, Poland was the host country, welcoming all participants with great hospitality and warmth to their beautiful capital Warsaw. The three conference days were full of learning about medical topics ranging from […]
Continue readingFirst GIST Patient Survey – 2016
Don’t miss the deadline! – our first GIST Patient Survey closes on 10th September 2016… Over the next few months we will be conducting a number of surveys which will help us to understand the current treatment landscape for GIST patients in the UK. We are trying to gather as much feedback as possible on […]
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Improving care for patients with rare cancers in Europe – July 2016
Our trustee Jayne Bressington spoke to Cancer World “Shaping the future of cancer care” – an article about improving care for patients with rare cancers in Europe. Read the article here. Last month it was the 7th PAWS-GIST Clinic, at Addenbrookes Hospital in Cambridge. Please read the Clinic Report here.
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GIST Support UK attends Cancer52 parliamentary reception – May 2016
On 20th April Nic Puntis (Chair GSUK) & Jayne Bressington (Vice Chair GSUK / Patient Director PAWS-GIST, pictured left) went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers. The reception was hosted and addressed by Chairman of the All-Party Parliamentary Group on Cancer […]
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GSUK Research Update – April 2016
In 2012 GIST Support UK granted £20,000 funding to Professor Ian Judson and his team at the Royal Marsden for a research project. This project aimed to collect tissue samples stored in hospital pathology departments for GIST patients who had been treated at the Marsden over previous years and then to retrospectively undertake mutational analysis of […]
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Ride London 2016
We still have one place available. Go to our Fundraising page for more details.
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Regorafenib remains on the CDF in England for GIST patients – September 2015
As you may already be aware, great news was released on Friday 4th September that Regorafenib has remained on the NHS England Cancer Drug Fund List for GIST patients, having stayed above the threshold for inclusion on the CDF, further to the second phase of review. At the patient organisation briefing in Whitehall this morning, […]
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PAWS-GIST – Clinic 5 – August 2015
Click here to read about the latest clinic news…
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