Jane’s Story
Hello, my name is Jane Lochrie. For as long as I can remember I’ve always been a little plump, constantly tired and sleeping. It was a standard joke about “how long could Jane stay awake?”. As life went on; career, marriage, children…. there was always an excuse about why I was fat. Everybody; doctor, friends, […]
Continue readingVirtual Patients’ Meeting, October 2021
We held our second “Virtual” GCUK Patient & Carer meeting in on 14th October 2021 and were joined by seventy-five patients and carers to see and hear presentations from our specialist friends: Dr Carys Morgn & Dr Ramesh Bulusu who gave a fantastic presentation on the use of “Radiotherapy in GIST Cancer“. GIST patient carer and […]
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PAWS-GIST Clinics re-open!
PAWS-GIST Clinic -October 2021 Well, it has been a momentous week for the PAWS-GIST Clinic.. On Thursday 30th September and Friday 1st October, we hosted the first clinic since November 2019 after which everything shut down when the pandemic struck… A lot has changed in that time; – The hotel that we have used since […]
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NICE – Single Technology Appraisal (STA) – Avapritinib for treating unresectable or metastatic gastrointestinal stromal tumours – Terminated…
We are very disappointed to report that the NICE single technology appraisal of avapritinib (Ayvakit) for the treatment of unresectable or metastatic PDGFRA D842V-mutant GIST has been terminated. PDGFRA D842V-mutant GIST is an ultra-rare form of GIST affecting 5-10 newly diagnosed GIST cancer patients each year in the UK. After a significant amount of work […]
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Dinnington Town F.C. Fundraising for GIST Cancer UK
Lee Brown was first diagnosed with GIST cancer 6 years ago. Lee and his family and friends have been amazing in putting on a variety of fun challenges and events designed to raise awareness of GIST Cancer and raise funds for GIST Cancer UK. Determined to beat his target of £20,000, Lee has joined his […]
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Online GIST Patient/Carer Meeting – Thursday, 14th October 2021 – via Zoom
It’s not long now until our next “Virtual Patient/Carer Meeting” via Zoom on the afternoon of Thursday, 14th October 2021. If you would like to join us please click on this link to register for your place and you will be sent the joining instructions. We have two of the UK’s leading GIST Specialists, a […]
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GIST Cancer and the NHS “Help us to Help you” campaign
GIST Cancer UK is delighted to be supporting and contributing to the NHS “Help us to Help you” campaign. Please take a look at the NHS campaign video which includes GIST patient Sarah along with Stephen Fry and Dr Hilary Jones… During the COVID-19 pandemic we have all been isolating. Isolation has prevented many from […]
Continue readingBennet’s Story
I am 75 years old and was diagnosed with a Gastrointestinal Stromal Tumour (GIST) May / June 2021. My tumour is 21cm long by 21cms wide. I started experiencing problems at the end of March 2021 and was having bowel issues and not going to the toilet. My wife phoned the GP which led to […]
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The 20for20 Challenge is back!
The 20for20 Challenge is back! We have again joined forces with 19 other less well known cancer charities to create an exciting 20-day challenge to raise funds to make up the shortfall in our income due to the pandemic. Funds that are vital to enable us to continue with our work. This year’s 20for20 Challenge […]
Continue readingJayne’s Story
I was diagnosed in 2016 with diabetes and high blood pressure so decided to lose weight and eat healthy. By the beginning of 2020 I had lost almost 6 stone and my diabetes was in remission and my blood pressure normal. In March 2020 at the beginning of the COVID lockdown I started using a […]
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