regorafenib (Stivarga®) is accepted for use within NHS Scotland – 2015
regorafenib has been approved in Scotland for treatment of adult patients with unresectable or metastatic gastrointestinal stromal tumors (GIST) who have progressed on or are intolerant to prior treatment with imatinib and sunitinib. This advice takes account of the benefits of a Patient Access Scheme (PAS) that improves the cost-effectiveness of regorafenib and is contingent […]
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GIST Support UK’s #100000voices Campaign 2015
March 2015 Jayne Bressington, vice chair of GIST Support UK (https://www.gistcancer.org.uk/), talks to BBC Radio Humberside about the government’s plans to stop funding for the rare cancer drug Regorafenib. The petition to stop these cuts has gained 100,000+ signatures and we are now calling on everyone to write to their local parliamentary candidates ahead of […]
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Press Release: UKTV announces GIST Support UK as its Charity of the Year 2015
UKTV staff to cycle from London to Versailles in new charitable challenge London, Tuesday 27 January 2015 Award-winning media company, UKTV, announced today that GIST Support UK has been voted by staff as the company’s Charity of the Year for 2015. GIST (GastroIntestinal Stromal Tumour) is a rare form of cancer that affects both adults […]
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Fundraising News: 2014 Virgin Money London Marathon in aid of Gist Support UK
On 13th April Robert Beale is running the 2014 Virgin Money London Marathon in aid of Gist Support UK. To Donate and wish him all the best visit the following link. http://uk.virginmoneygiving.com/RobertBeale2
Continue readingScottish Sarcoma Network – 2013
Patients who are interested, are welcome to attend any of the Sarcoma education days, which you can see on the Scottish Sarcoma Network website. www.ssn.scot.nhs.uk/ Any patients that are interested in these days, or would be interested in extra support, find out about available services or need help with any concerns are encouraged to get […]
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Pub Quiz in aid of Gist Support UK – 2013
The Pub Quiz on Oct 17 in Tooting was an absolutely fantastic evening and success. First and foremost, the biggest mention must go to Barbara’s sister Jan for putting together the event pretty much single-handedly by all accounts – even persuading her son to fly in from Moscow – that is serious fundraising for you! […]
Continue readingEORTC funded Symptom Based Questionnaire project – 2013
Thanks to a great response from our meeting, listserve, facebook, twitter & on our website the trial below is now closed. Dr Sodergren extends her thanks and will be in contact with us again in the future. Trial Request (CLOSED) At our meeting in October 2013, Dr Samantha Sodergren came to request our help to recruit GIST patients […]
Continue readingGSUK helps to fund GIST research – 2012
On 20th August we were delighted to present our medical consultant, Professor Ian Judson, with a cheque for £20,000 to help support a new research project. Professor Judson plans to collect data on all the patients who are being or have been treated at the Royal Marsden Hospital, in order to study the correlation between […]
Continue readingPaediatric, Adolescent, Wild-type & Syndromic GIST update – 2012
PAWS-GIST is raising funds to set up a clinic in the UK for Paediatric, Adolescent, Wild-type & Syndromic GIST patients. Our aim being to improve treatment and ultimately find a cure for this rare form of cancer. We hope that by the end of 2012 we will be in a position to launch a PAWS-GIST […]
Continue readingSMC approves adjuvant use of Imatinib – 2012
Imatinib (Glivec) has been accepted for restricted use within Scotland for certain high risk GIST adult patients. The SMC accepted that adjuvant imatinib for three years compared to one year significantly improved survival. However, this treatment has yet to be approved by NICE for England & Wales. Click here for full details from SMC.
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