We are doing our best to improve the data that is held by Public Health England and the NHS so that there is a better understanding about GIST and sarcoma. Our friends at Sarcoma UK have just launched a survey covering all sarcomas and GIST, with the aim of gathering new and updated data on […]

Join our FREE ENTRY LUCKY DRAW / Photo competition and help us to spread the word(s)…  GIST Cancer UK! As many of you will know GIST Support UK (GSUK) is in the process of changing names to GIST Cancer UK (GCUK) so that everyone can understand that GIST is cancer.   Continuing the soft launch of our name […]

November continued to be a very exciting month for our PAWS-GIST alliance. From the NCRI awards ceremony in Glasgow we travelled south to Cambridge. Here we met with representatives from Groundwork UK and Tesco who presented us with a cheque for £10,000 which has been awarded to PAWS-GIST as a result of the “Tesco Centenary Grant Award”. This fantastic […]

We are really excited to announce that our PAWS GIST (Paediatric Adolescent Wild-type & Syndromic GIST) alliance has been awarded the National Cancer Research Institute‘s “Collaboration award”. This award recognises our unique European multidisciplinary team of patients, doctors, specialists and researchers who are collaborating to improve treatments and working to find a cure for PAWS-GIST cancer. The nominations were reviewed […]

The ESMO  2019 conference (European Society of Medical Oncology) was held in Barcelona this weekend. Our Vice chair Jayne Bressington was there for four days of learning, attending seminars, meeting with Rare Cancers Europe, networking and searching for news and updates relevant to GIST patients. There are a range of things that she will be following up over […]

We have hosted two PAWS-GIST clinics at Addenbrookes Hospital in Cambridge so far this year, one in April and one on 6th September which was our sixteenth clinic since we opened the clinic in 2014. Eight, then seven patients and their carers attended our April and September clinics respectively, some for the first time and […]

GSUK Trustee Terry Weldon has recently been approved as a patient representative for the National Cancer Research Institute, Sarcoma clinical group. We have been asked to invite anyone who has had surgery, for cancer or for something else, to complete a survey for a surgery research project being run by the NIHR Bristol Biomedical research […]

On Wednesday last week, GIST Support UK’s intrepid trustee Terry Weldon was in Leeds for a “Sarcoma Survivorship” event, hosted St James hospital sarcoma team. Terry was there to contribute – and also to learn and has reported on what he learned at the event as follows: After cancer, life does not return to “normal”. […]

NHS England has published the long awaited National Sarcoma Service Specification which incorporates the National GIST guidelines and is designed to clearly state who should be managing GIST and Sarcoma patient care. This is the first time that Sarcoma and GIST services have been commissioned to deliver care to patients across England and follows many […]

Today ,Cancer52 launched their  “Getting a better deal for Rare Cancers Report“ at the House of Commons in London. Included in the report were rare cancer patient case studies including the case of our very own GIST patient, Stephen Palmer (pictured right), who features throughout the report and whose case study is detailed on page 14. […]