GIST Cancer UK News

Please see the latest news, research and findings below...

#100,000voices e-petition delivered to No. 10 Downing Street – 23 June 2015

Sincere thanks to everyone who has supported us with the call to retain regorafenib on the Cancer Drugs fund for GIST patients. Yesterday was our appointment with No. 10 Downing Street to deliver our #100,000voices e-petition containing 103,841 signatures supporting retention of regorafenib for GIST patients in England. We were joined by MP’s representing constituents […]

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Regorafenib is now officially back on the cancer drugs fund for GIST patients in England – 2015

23rd May 2015 – We are absolutely delighted to report that Regorafenib is now officially back on the cancer drugs fund for GIST patients in England. This is fantastic news and we would like to thank everyone who contributed to this decision: our fantastic #100,000voices team including William Bassett and the team at TMW. our Clinicians […]

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regorafenib (Stivarga®) is accepted for use within NHS Scotland – 2015

regorafenib has been approved in Scotland for treatment of adult patients with unresectable or metastatic gastrointestinal stromal tumors (GIST) who have progressed on or are intolerant to prior treatment with imatinib and sunitinib. This advice takes account of the benefits of a Patient Access Scheme (PAS) that improves the cost-effectiveness of regorafenib and is contingent […]

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GIST Support UK’s #100000voices Campaign 2015

March 2015 Jayne Bressington, vice chair of GIST Support UK (, talks to BBC Radio Humberside about the government’s plans to stop funding for the rare cancer drug Regorafenib. The petition to stop these cuts has gained 100,000+ signatures and we are now calling on everyone to write to their local parliamentary candidates ahead of […]

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Scottish Sarcoma Network – 2013

Patients who are interested, are welcome to attend any of the Sarcoma education days, which you can see on the Scottish Sarcoma Network website. Any patients that are interested in these days, or would be interested in extra support, find out about available services or need help with any concerns are encouraged to get […]

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Pub Quiz in aid of Gist Support UK – 2013

The Pub Quiz on Oct 17 in Tooting was an absolutely fantastic evening and success. First and foremost, the biggest mention must go to Barbara’s sister Jan for putting together the event pretty much single-handedly by all accounts – even persuading her son to fly in from Moscow – that is serious fundraising for you! […]

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