UK clinical practice guidelines for the management of gastrointestinal stromal tumours (GIST) – May 2017
We are delighted to announce that the National GIST guidelines have been updated by the British Sarcoma Group GIST specialists and are now published. A copy of the latest guidelines can be viewed here.
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BBC’s report on the Cancer Drugs Fund – April 2017
GSUK’s Chair Nic Puntis discusses the BBC’s report on the Cancer Drugs Fund on BBC Wiltshire Radio – listen below…
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Michael Sayers – March 2017
It is with great sadness that we have to announce the passing of Michael Sayers. Michael fought a brave battle with GIST for over 13 years and during that time was a Trustee of GIST Support UK. We are sure that many GIST patients and carers benefited from Michael’s advice and support through his postings […]
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Strathbogie Junior Agricultural Club Support GIST Patients – November 2016
Thank you Strathbogie Junior Agricultural Club! On Wednesday 16th November we were presented with a cheque for £750 raised by the Strathbogie Junior Agricultural Club in Aberdeenshire. Grateful thanks go to Anna Cowie and everyone who has helped to raise this donation. We really appreciate your help and support! Many thanks to everyone who raises […]
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7th SPAEN Annual Conference, September 8-10, 2016 in Warsaw, Poland
Once again, the community of patient advocates for sarcomas, GIST and desmoids came together for the annual Sarcoma PAtients EuroNet Conference. This year, Poland was the host country, welcoming all participants with great hospitality and warmth to their beautiful capital Warsaw. The three conference days were full of learning about medical topics ranging from […]
Continue readingFirst GIST Patient Survey – 2016
Don’t miss the deadline! – our first GIST Patient Survey closes on 10th September 2016… Over the next few months we will be conducting a number of surveys which will help us to understand the current treatment landscape for GIST patients in the UK. We are trying to gather as much feedback as possible on […]
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Improving care for patients with rare cancers in Europe – July 2016
Our trustee Jayne Bressington spoke to Cancer World “Shaping the future of cancer care” – an article about improving care for patients with rare cancers in Europe. Read the article here. Last month it was the 7th PAWS-GIST Clinic, at Addenbrookes Hospital in Cambridge. Please read the Clinic Report here.
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GIST Support UK attends Cancer52 parliamentary reception – May 2016
On 20th April Nic Puntis (Chair GSUK) & Jayne Bressington (Vice Chair GSUK / Patient Director PAWS-GIST, pictured left) went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers. The reception was hosted and addressed by Chairman of the All-Party Parliamentary Group on Cancer […]
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GSUK Research Update – April 2016
In 2012 GIST Support UK granted £20,000 funding to Professor Ian Judson and his team at the Royal Marsden for a research project. This project aimed to collect tissue samples stored in hospital pathology departments for GIST patients who had been treated at the Marsden over previous years and then to retrospectively undertake mutational analysis of […]
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Ride London 2016
We still have one place available. Go to our Fundraising page for more details.
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