GIST Cancer UK News
Please see the latest news, research and findings below...
Have your say in the next phase of the “Future of Surgery” research project…..
GSUK Trustee Terry Weldon has recently been approved as a patient representative for the National Cancer Research Institute, Sarcoma clinical group. We have been asked to invite anyone who has had surgery, for cancer or for something else, to complete a survey for a surgery research project being run by the NIHR Bristol Biomedical research […]
Continue reading →Report from last weeks “Sarcoma Survivorship” event, hosted by St James hospital, Leeds
On Wednesday last week, GIST Support UK’s intrepid trustee Terry Weldon was in Leeds for a “Sarcoma Survivorship” event, hosted St James hospital sarcoma team. Terry was there to contribute – and also to learn and has reported on what he learned at the event as follows: After cancer, life does not return to “normal”. […]
Continue reading →NHS England launches National Sarcoma Service Specification incorporating National GIST Guidelines
NHS England has published the long awaited National Sarcoma Service Specification which incorporates the National GIST guidelines and is designed to clearly state who should be managing GIST and Sarcoma patient care. This is the first time that Sarcoma and GIST services have been commissioned to deliver care to patients across England and follows many […]
Continue reading →GIST in Cancer52’s “Getting a better deal for Rare and Less Common Cancers report launched today…..
Today ,Cancer52 launched their “Getting a better deal for Rare Cancers Report“ at the House of Commons in London. Included in the report were rare cancer patient case studies including the case of our very own GIST patient, Stephen Palmer (pictured right), who features throughout the report and whose case study is detailed on page 14. […]
Continue reading →Vote for GIST Support UK to bag a share of Tesco’s community fund!
GIST Support UK is bidding to bag a massive cash boost from the Tesco Bags of Help Centenary Grant initiative. A special voting of Tesco’s community funding scheme will award grants of £25,000, £15,000 and £10,000 to community projects. In each Tesco region shoppers are being invited to vote for who they think should take away […]
Continue reading →Introducing GIST Support UK’s Brand new Website!
We are delighted to mark GIST Support UK’s 10th Anniversary in 2019 with the launch of our brand new website! Our work to support patients and stimulate research for improved treatments and a cure for GIST cancer continues and our address remains the same www.gistsupportuk.com. We hope that you like the new design. With very […]
Continue reading →News from ASCO 2019
Blueprint Medicines announced data from their registration-enabling NAVIGATOR trial of avapritinib in patients with PDGFRA Exon 18 mutant GIST and fourth-line GIST. These results were presented at the American Society of Clinical Oncology (ASCO) 2019 Annual Meeting and will form the basis for planned worldwide marketing applications for avapritinib. The data demonstrate clinical activity […]
Continue reading →Rare Cancer Patient SURVEY – October 2018
GIST SUPPORT UK is a member of Cancer52 who are an alliance of nearly 100 rare cancer groups. Cancer52 members have been approached by the research team at the Sir William Dunn School of Pathology, University of Oxford, who are working on a European funded rare cancer initiative that seeks to find and develop innovative solutions to […]
Continue reading →Founding Members of the International Paediatric and SDH-Deficient GIST Consortium – September 2018
GIST SUPPORT UK UNITES WITH WORLD EXPERTS AS FOUNDING MEMBERS OF THE “INTERNATIONAL PAEDIATRIC AND SDH-DEFICIENT GIST CONSORTIUM” GIST Support UK and our specialist clinic team PAWS-GIST at the Addenbrooke’s Cambridge University Hospital NHS Foundation Trust have joined forces with Liferaft Group of America and world specialists as founding members of the International Paediatric and […]
Continue reading →New Horizons GIST Conference in Vienna, Austria – September 5 – 7, 2018
Last week, three GSUK trustees were privileged to attend a most stimulating and informative New Horizons GISTconference in Vienna on supporting GIST patients. Our heads are buzzing with what we learned and the people we met and we are working to compile a report so that we can feed back what we have learned to others […]
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