First GIST Patient Survey – 2016
Don’t miss the deadline! – our first GIST Patient Survey closes on 10th September 2016… Over the next few months we will be conducting a number of surveys which will help us to understand the current treatment landscape for GIST patients in the UK. We are trying to gather as much feedback as possible on […]
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Improving care for patients with rare cancers in Europe – July 2016
Our trustee Jayne Bressington spoke to Cancer World “Shaping the future of cancer care” – an article about improving care for patients with rare cancers in Europe. Read the article here. Last month it was the 7th PAWS-GIST Clinic, at Addenbrookes Hospital in Cambridge. Please read the Clinic Report here.
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GIST Support UK attends Cancer52 parliamentary reception – May 2016
On 20th April Nic Puntis (Chair GSUK) & Jayne Bressington (Vice Chair GSUK / Patient Director PAWS-GIST, pictured left) went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers. The reception was hosted and addressed by Chairman of the All-Party Parliamentary Group on Cancer […]
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GSUK Research Update – April 2016
In 2012 GIST Support UK granted £20,000 funding to Professor Ian Judson and his team at the Royal Marsden for a research project. This project aimed to collect tissue samples stored in hospital pathology departments for GIST patients who had been treated at the Marsden over previous years and then to retrospectively undertake mutational analysis of […]
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Ride London 2016
We still have one place available. Go to our Fundraising page for more details.
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Regorafenib remains on the CDF in England for GIST patients – September 2015
As you may already be aware, great news was released on Friday 4th September that Regorafenib has remained on the NHS England Cancer Drug Fund List for GIST patients, having stayed above the threshold for inclusion on the CDF, further to the second phase of review. At the patient organisation briefing in Whitehall this morning, […]
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PAWS-GIST – Clinic 5 – August 2015
Click here to read about the latest clinic news…
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Regorafenib recommended for use within NHS Wales for GIST – July 2015
We are delighted to report that Regorafenib has been recommended for use within NHS Wales for GIST Please see the AWMSG Website. This means that within three months of Ministerial approval (issued July 2015), regorafenib will be routinely available in the NHS across Wales. A fantastic outcome for GIST patients in Wales!
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#100,000voices e-petition delivered to No. 10 Downing Street – 23 June 2015
Sincere thanks to everyone who has supported us with the call to retain regorafenib on the Cancer Drugs fund for GIST patients. Yesterday was our appointment with No. 10 Downing Street to deliver our #100,000voices e-petition containing 103,841 signatures supporting retention of regorafenib for GIST patients in England. We were joined by MP’s representing constituents […]
Continue readingRegorafenib is now officially back on the cancer drugs fund for GIST patients in England – 2015
23rd May 2015 – We are absolutely delighted to report that Regorafenib is now officially back on the cancer drugs fund for GIST patients in England. This is fantastic news and we would like to thank everyone who contributed to this decision: our fantastic #100,000voices team including William Bassett and the team at TMW. our Clinicians […]
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