GIST SUPPORT UK is a member of Cancer52 who are an alliance of nearly 100 rare cancer groups. Cancer52 members have been approached by the research team at the Sir William Dunn School of Pathology, University of Oxford, who are working on a European funded rare cancer initiative that seeks to find and develop innovative solutions to […]

GIST SUPPORT UK UNITES WITH WORLD EXPERTS AS FOUNDING MEMBERS OF THE  “INTERNATIONAL PAEDIATRIC AND SDH-DEFICIENT GIST CONSORTIUM” GIST Support UK and our specialist clinic team PAWS-GIST at the  Addenbrooke’s Cambridge University Hospital NHS Foundation Trust have  joined forces with Liferaft Group of America and world specialists as  founding members of the International Paediatric and […]

Last week, three GSUK trustees were privileged to attend a most stimulating and informative New Horizons GISTconference in Vienna on supporting GIST patients. Our heads are buzzing with what we learned and the people we met and we are working to compile a report so that we can feed back what we have learned to others […]

GIST patient advocates from the global GIST patient community came together, to interact with top GIST experts, to have access to state-of-the- art medical and scientific information and to exchange best practice in patient advocacy among each other. The 2018 conference was balanced symbiosis of medical content, advocacy topics and capacity building sessions. NHGIST_2018_Conference-Report_RL_D (3)