GIST Cancer UK News
Please see the latest news, research and findings below...
Report from the PAWS-GIST Clinic 6th Sept 2019 – Addenbrookes Hospital
We have hosted two PAWS-GIST clinics at Addenbrookes Hospital in Cambridge so far this year, one in April and one on 6th September which was our sixteenth clinic since we opened the clinic in 2014. Eight, then seven patients and their carers attended our April and September clinics respectively, some for the first time and […]
Continue reading →Sarah’s Story
In September 2020 my daughter, Sophie, wanted to donate blood and I agreed to go with her. Unfortunately, my blood count was too low to be able to donate and they suggested I contacted my doctor. After a blood test my doctor asked to see me as my blood count was at 80 (it should […]
Continue reading →Have your say in the next phase of the “Future of Surgery” research project…..
GSUK Trustee Terry Weldon has recently been approved as a patient representative for the National Cancer Research Institute, Sarcoma clinical group. We have been asked to invite anyone who has had surgery, for cancer or for something else, to complete a survey for a surgery research project being run by the NIHR Bristol Biomedical research […]
Continue reading →Report from last weeks “Sarcoma Survivorship” event, hosted by St James hospital, Leeds
On Wednesday last week, GIST Support UK’s intrepid trustee Terry Weldon was in Leeds for a “Sarcoma Survivorship” event, hosted St James hospital sarcoma team. Terry was there to contribute – and also to learn and has reported on what he learned at the event as follows: After cancer, life does not return to “normal”. […]
Continue reading →NHS England launches National Sarcoma Service Specification incorporating National GIST Guidelines
NHS England has published the long awaited National Sarcoma Service Specification which incorporates the National GIST guidelines and is designed to clearly state who should be managing GIST and Sarcoma patient care. This is the first time that Sarcoma and GIST services have been commissioned to deliver care to patients across England and follows many […]
Continue reading →GIST in Cancer52’s “Getting a better deal for Rare and Less Common Cancers report launched today…..
Today ,Cancer52 launched their “Getting a better deal for Rare Cancers Report“ at the House of Commons in London. Included in the report were rare cancer patient case studies including the case of our very own GIST patient, Stephen Palmer (pictured right), who features throughout the report and whose case study is detailed on page 14. […]
Continue reading →Vote for GIST Support UK to bag a share of Tesco’s community fund!
GIST Support UK is bidding to bag a massive cash boost from the Tesco Bags of Help Centenary Grant initiative. A special voting of Tesco’s community funding scheme will award grants of £25,000, £15,000 and £10,000 to community projects. In each Tesco region shoppers are being invited to vote for who they think should take away […]
Continue reading →Introducing GIST Support UK’s Brand new Website!
We are delighted to mark GIST Support UK’s 10th Anniversary in 2019 with the launch of our brand new website! Our work to support patients and stimulate research for improved treatments and a cure for GIST cancer continues and our address remains the same www.gistsupportuk.com. We hope that you like the new design. With very […]
Continue reading →News from ASCO 2019
Blueprint Medicines announced data from their registration-enabling NAVIGATOR trial of avapritinib in patients with PDGFRA Exon 18 mutant GIST and fourth-line GIST. These results were presented at the American Society of Clinical Oncology (ASCO) 2019 Annual Meeting and will form the basis for planned worldwide marketing applications for avapritinib. The data demonstrate clinical activity […]
Continue reading →Patient Meeting Q & A (Birmingham 2019)
Panel discussion