regorafenib (Stivarga®) is accepted for use within NHS Scotland – 2015

regorafenib has been approved in Scotland for treatment of adult patients with unresectable or metastatic gastrointestinal stromal tumors (GIST) who have progressed on or are intolerant to prior treatment with imatinib and sunitinib.

This advice takes account of the benefits of a Patient Access Scheme (PAS) that improves the cost-effectiveness of regorafenib and is contingent upon the continuing availability of the PAS in NHS Scotland or a list price that is equivalent or lower.

This advice takes account of the views from a Patient and Clinician Engagement (PACE) meeting.

The link below takes you to more detail on the Scottish Medicines website:


Richard Bassett and Tori Jane’s labour party candidate Sally Keeble, organised a meeting with Andy Burnham (Shadow Secretary of State for Health) as he visited Northampton.

Richard was otherwise engaged at a consultation with Professor Judson so Jayne Bressington, Vice Chair of GIST Support UK was asked to discuss Richard’s situation and our ‪#‎100000voices campaign calling for retention of regorafenib on the Cancer Drugs Fund for GIST patients.Andy was very understanding and keen to help. He will be writing to senior members of the NHS to support our campaign.

Also today Vicky Rockingham appeared on a new ITV show called O’Brien and participated in a debate about NHS expenditure. Thankyou for representing our needs to ably Vicky. You did us proud!

Posted in GIST News.