GIST Support UK’s #100000voices Campaign 2015

March 2015

Jayne Bressington, vice chair of GIST Support UK (, talks to BBC Radio Humberside about the government’s plans to stop funding for the rare cancer drug Regorafenib. The petition to stop these cuts has gained 100,000+ signatures and we are now calling on everyone to write to their local parliamentary candidates ahead of this year’s election.

GIST Support UK’s #100000voices Campaign hits target – 18th March 2015

Our #100000voices campaign beat the target number yesterday and currently stands at 101,304!
We are still working to re-instate regorafenib to the CDF for GIST patients but this initial milestone has now been achieved.

Thank you for all your support!

GIST Support UK's #100000voices Campaign hits target - 18th March 2015

GIST Support UK Launches Media Campaign to Reinstate Regorafenib to the Cancer Drugs Fund…

Please sign & share our e-petition

We need 100,000 signatures. #100,000voices

We are trying to get 100,000 signatures on our e-petition to get regorafenib re-instated to the cancer drugs fund. Click here to sign the petition and add your voice.

Please take two quick minutes to add your voice to the petition and become one of the #100000voices?

Doing so will help keep the life-saving drug Regorafenib available and ensure that those with rare cancer get a fair hearing.

Please Print and display our poster…

Dr Ramesh Bulusu – Interview discussing Regorafenib and GIST

In the News….

The Mail on Sunday – Health correspondent Stephen Adams’ report about Regorafenib…

Vicky Rockigham and Richard Bassett (below) were interviewed by the daily Mail and their story reported on Sunday 1st March.
Vicky Rockigham and Richard Bassett
Read the full story here

Picture Courtesy of Mail on Sunday and Matthew Pover.

In the News…

Jemma Mitchell featured in a BBC South News report about regorafenib being cut from the CDF for GIST patients…

Many thanks to Jemma Mitchell for bravely sharing her feelings about what having regorafenib cut from the cancer drugs fund means to her and other GIST patients, during an interview with BBC South.

‘Pictures courtesy of BBC South Today’

Posted in GIST News.