PAWS-GIST is raising funds to set up a clinic in the UK for Paediatric, Adolescent, Wild-type & Syndromic GIST patients. Our aim being to improve treatment and ultimately find a cure for this rare form of cancer.
We hope that by the end of 2012 we will be in a position to launch a PAWS-GIST clinic in the UK.
Currently the only clinic of this type is in the USA at the National Institutes of Health in Washington DC. This clinic started 4 years ago and has to date seen 90 patients. PAWS-GIST aim to work collaboratively with the NIH clinic.
The NIH clinic has previously met twice annually. The following information details what happened at the 9th clinic which happened in June and includes the latest information available from this specialist group who focus specifically on Paediatric & Wild-type GIST patients.