GCUK appoints new Medical Advisory Board Chair…

During the summer we were delighted to be able to convene our first face-to-face Medical Advisory Board (MAB) meeting in many years! There was  packed agenda so that everyone could be brought upto date with the latetest GIST medical & research dvelopments, while also discussing plans for future projects. Professor Ian Judson has been GCUK’s […]

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Time for a change…

Hello Everyone, I am writing to let you know that having served three months’ notice, I will be stepping down as Vice Chair and Trustee of GIST Cancer UK at the end of May 2022. I have served as a trustee of GIST Cancer UK since 2010 and as Vice Chair of the charity for […]

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Stella Turner

Farewell and Thank you Stella…

Stella Turner is stepping down as a Trustee for GIST Cancer UK at the end of April 2022. After nearly five years of volunteering her time and skill, Stella is keen to thank all the amazing fundraisers she has worked with since she took on the role of GCUK’s Fundraising Lead a couple of years […]

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“Diagnosing GIST” – Training for GP’s & Primary Care Professionals – Please share…

We are delighted to launch GCUK’s educational video for GP’s and Primary Care Clinicians – “Diagnosing GIST”. This training material has been developed by GP and Cancer Lead for Gloucestershire, Dr Sadaf Haque, working in collaboration with GIST Cancer UK and the UK’s leading GIST Sarcoma clinicians. It is designed to help GP’s and Primary […]

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New Sarcoma & GIST – Early diagnosis course for Health Professionals

GIST Cancer UK are delighted to have worked with online cancer education specailists GatewayC to develop a new course available to health professionals entitled ‘Sarcoma -Early Diagnosis’. GIST is classified as a Sarcoma This new course aims to support identification and early diagnosis of Sarcoma and GIST and increase confidence in clinical decision-making regarding referral […]

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PAWS-GIST Clinics re-open!

PAWS-GIST Clinic -October 2021 Well, it has been a momentous week for the PAWS-GIST Clinic.. On Thursday 30th September and Friday 1st October, we hosted the first clinic since November 2019 after which everything shut down when the pandemic struck… A lot has changed in that time; – The hotel that we have used since […]

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NICE – Single Technology Appraisal (STA) – Avapritinib for treating unresectable or metastatic gastrointestinal stromal tumours – Terminated…

We are very disappointed to report that the NICE single technology appraisal of avapritinib (Ayvakit) for the treatment of unresectable or metastatic PDGFRA D842V-mutant GIST has been terminated. PDGFRA D842V-mutant GIST is an ultra-rare form of GIST affecting 5-10 newly diagnosed GIST cancer patients each year in the UK. After a significant amount of work […]

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