GIST SUPPORT UK UNITES WITH WORLD EXPERTS AS FOUNDING MEMBERS OF THE “INTERNATIONAL PAEDIATRIC AND SDH-DEFICIENT GIST CONSORTIUM” GIST Support UK and our specialist clinic team PAWS-GIST at the Addenbrooke’s Cambridge University Hospital NHS Foundation Trust have joined forces with Liferaft Group of America and world specialists as founding members of the International Paediatric and […]
Continue reading
Event News
New Horizons GIST Conference in Vienna, Austria – September 5 – 7, 2018
Last week, three GSUK trustees were privileged to attend a most stimulating and informative New Horizons GISTconference in Vienna on supporting GIST patients. Our heads are buzzing with what we learned and the people we met and we are working to compile a report so that we can feed back what we have learned to others […]
Continue reading7th SPAEN Annual Conference, September 8-10, 2016 in Warsaw, Poland
Once again, the community of patient advocates for sarcomas, GIST and desmoids came together for the annual Sarcoma PAtients EuroNet Conference. This year, Poland was the host country, welcoming all participants with great hospitality and warmth to their beautiful capital Warsaw. The three conference days were full of learning about medical topics ranging from […]
Continue readingImproving care for patients with rare cancers in Europe – July 2016
Our trustee Jayne Bressington spoke to Cancer World “Shaping the future of cancer care” – an article about improving care for patients with rare cancers in Europe. Read the article here. Last month it was the 7th PAWS-GIST Clinic, at Addenbrookes Hospital in Cambridge. Please read the Clinic Report here.
Continue readingGIST Support UK attends Cancer52 parliamentary reception – May 2016
On 20th April Nic Puntis (Chair GSUK) & Jayne Bressington (Vice Chair GSUK / Patient Director PAWS-GIST, pictured left) went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers. The reception was hosted and addressed by Chairman of the All-Party Parliamentary Group on Cancer […]
Continue readingRide London 2016
We still have one place available. Go to our Fundraising page for more details.
Continue reading#100,000voices e-petition delivered to No. 10 Downing Street – 23 June 2015
Sincere thanks to everyone who has supported us with the call to retain regorafenib on the Cancer Drugs fund for GIST patients. Yesterday was our appointment with No. 10 Downing Street to deliver our #100,000voices e-petition containing 103,841 signatures supporting retention of regorafenib for GIST patients in England. We were joined by MP’s representing constituents […]
Continue readingPress Release: UKTV announces GIST Support UK as its Charity of the Year 2015
UKTV staff to cycle from London to Versailles in new charitable challenge London, Tuesday 27 January 2015 Award-winning media company, UKTV, announced today that GIST Support UK has been voted by staff as the company’s Charity of the Year for 2015. GIST (GastroIntestinal Stromal Tumour) is a rare form of cancer that affects both adults […]
Continue readingFundraising News: 2014 Virgin Money London Marathon in aid of Gist Support UK
On 13th April Robert Beale is running the 2014 Virgin Money London Marathon in aid of Gist Support UK. To Donate and wish him all the best visit the following link. http://uk.virginmoneygiving.com/RobertBeale2
Continue readingScottish Sarcoma Network – 2013
Patients who are interested, are welcome to attend any of the Sarcoma education days, which you can see on the Scottish Sarcoma Network website. www.ssn.scot.nhs.uk/ Any patients that are interested in these days, or would be interested in extra support, find out about available services or need help with any concerns are encouraged to get […]
Continue reading