GIST SUPPORT UK UNITES WITH WORLD EXPERTS AS FOUNDING MEMBERS OF THE  “INTERNATIONAL PAEDIATRIC AND SDH-DEFICIENT GIST CONSORTIUM” GIST Support UK and our specialist clinic team PAWS-GIST at the  Addenbrooke’s Cambridge University Hospital NHS Foundation Trust have  joined forces with Liferaft Group of America and world specialists as  founding members of the International Paediatric and […]

Last week, three GSUK trustees were privileged to attend a most stimulating and informative New Horizons GISTconference in Vienna on supporting GIST patients. Our heads are buzzing with what we learned and the people we met and we are working to compile a report so that we can feed back what we have learned to others […]

  Once again, the community of patient advocates for sarcomas, GIST and desmoids came together for the annual Sarcoma PAtients EuroNet Conference. This year, Poland was the host country, welcoming all participants with great hospitality and warmth to their beautiful capital Warsaw. The three conference days were full of learning about medical topics ranging from […]

Our trustee Jayne Bressington spoke to Cancer World “Shaping the future of cancer care” – an article about improving care for patients with rare cancers in Europe. Read the article here. Last month it was the 7th PAWS-GIST Clinic, at Addenbrookes Hospital in Cambridge.   Please read the Clinic Report here.

On 20th April Nic Puntis (Chair GSUK) & Jayne Bressington (Vice Chair GSUK / Patient Director PAWS-GIST, pictured left) went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers. The reception was hosted and addressed by Chairman of the All-Party Parliamentary Group on Cancer […]

We still have one place available. Go to our Fundraising page for more details.

Sincere thanks to everyone who has supported us with the call to retain regorafenib on the Cancer Drugs fund for GIST patients. Yesterday was our appointment with No. 10 Downing Street to deliver our #100,000voices e-petition containing 103,841 signatures supporting retention of regorafenib for GIST patients in England. We were joined by MP’s representing constituents […]

UKTV staff to cycle from London to Versailles in new charitable challenge London, Tuesday 27 January 2015 Award-winning media company, UKTV, announced today that GIST Support UK has been voted by staff as the company’s Charity of the Year for 2015. GIST (GastroIntestinal Stromal Tumour) is a rare form of cancer that affects both adults […]

On 13th April Robert Beale is running the 2014 Virgin Money London Marathon in aid of Gist Support UK. To Donate and wish him all the best visit the following link. http://uk.virginmoneygiving.com/RobertBeale2